Worldwide Endometriosis March Explained

The Worldwide Endometriosis March (abbreviated EndoMarch, formerly Million Women March For Endometriosis) was the first global campaign involving synchronized, multi-city ‘march and rally’ demonstrations for the cause of endometriosis, an incurable and potentially debilitating disease that is quite common, affecting at least 1 in 10 women and girls, but which has an average diagnostic delay of about 10 years.[1] [2] [3] [4] [5] The EndoMarch movement was founded and sponsored by Drs. Camran, Ceana, Farr, and Azadeh Nezhat, and Barbara Page, and is registered as a 501(c)(3) public charity nonprofit, with headquarters in Palo Alto, California.[6]

Attendance

The first Worldwide EndoMarch took place on March 13, 2014, and occurred in approximately 43 countries, with a flagship event held on the National Mall in Washington, D.C.[6] [7] Multiple medical societies and medical schools co-sponsored the event, including the American Medical Association, American College of Obstetricians and Gynecologists, American Society of Reproductive Medicine, Society of Laparoendoscopic Surgeons, International Federation of Gynecology and Obstetrics, Royal College of Obstetricians and Gynecologists, the European Society of Human Reproduction and Embryology, The National Infertility Association, Howard University, and the World Symposium on Endometriosis and Oncofertility.[8] [9] Several U.S. public figures attended the first Washington, D.C. EndoMarch, including Oracle Co-CEO Safra Catz, Grammy-winning singer-songwriter Sheryl Crow, Law and Order SVU Actress Stephanie March, MSNBC News reporter Mika Brzezinski, and TV Political Analyst Michelle Bernard.[10] [11] [12] [13] [14] [15] Public figures from other countries have also supported the international marches.[16] [17] [18] [19]

The Second Annual Worldwide EndoMarch took place on March 28, 2015, and occurred in dozens of cities around the world, with fairly large turnouts in about 17 countries, and included demonstrations in several cities in the U.S., including Palo Alto and San Diego in California, Dover, Delaware, Hilo, Hawaii, New York, New York, Houston, Texas, and again in Washington, D.C.[20] [21] [22]

Organizers

As a mostly volunteer-run movement, endometriosis patients and patient advocates have been the main organizers and participants advocating for more awareness, as endometriosis is still so poorly understood that patients are routinely denied adequate medical care because their expressions of chronic pain are mistaken as signs of drug seeking, malingering, or mental illness.[23] [24] [25] [26]

External links

Groups Involved

News Coverage

Unknown/Other

Notes and References

  1. Thorley. Jennifer. Marching for endometriosis awareness. The Lancet Diabetes & Endocrinology . 2015 . 3 . 6 . 412 . The Lancet. 10.1016/S2213-8587(15)00143-6 . free .
  2. Web site: Jhumka. Gupta. Endometriosis is a social justice issue. 21 October 2014 . Huffington Post. 11 July 2015.
  3. Schaffer. Amanda. A breakthrough in a disease that no one likes to talk about. 11 July 2015. The New Yorker.
  4. News: Ellin. Abby. Endometriosis is often ignored in teenage girls . 11 July 2015. New York Times. 30 March 2015 .
  5. Web site: Endometriosis Fact Sheet. Department of Health and Human Services. 11 July 2015.
  6. News: Dremann. Sue. March to Washington to fight 'Eve's curse'. 22 July 2015. Palo Alto Weekly. February 18, 2014.
  7. News: Murillo. Michelle. Women rally to raise awareness of endometriosis. 11 July 2015. WTOP: Washington DC Top News.
  8. Web site: Worldwide Advocate's in Women's Health Unite to Raise Awareness for Endometriosis - The Unrecognized Disease. The Business Journals. 11 July 2015.
  9. Web site: Worldwide Event: Million Women March for Endometriosis. Society of Laparoendoscopic Surgeons. 11 July 2015.
  10. News: Sheryl Crow Headlines 2014 Million Women March for Endometriosis on National Mall Today. 11 July 2015. Broadway World. 14.
  11. News: Global Awareness March for Endometriosis. 11 July 2015. ABC7 News WJLA. 15.
  12. News: Steffenie March talks about the Global Endometriosis March on Let's Talk Live. 11 July 2015. ABC7 WJLA Let's Talk Live. 16.
  13. News: Mika Brzezinski talks about the EndoMarch. 11 July 2015. MSNBC Morning Joe. 17.
  14. News: Connor. Kris. Michelle Bernard Attends the Million Women March. 11 July 2015. Getty Images. 18.
  15. News: Croon for a Cause. 22 July 2015. People.com. March 14, 2014.
  16. News: Santi. Pascale. L'endométriose, maladie taboue. 11 July 2015. Le Monde. 19.
  17. News: Watts. Emma. Endo What?. 11 July 2015. Huffington Post UK. 20.
  18. News: Women with Endometriosis said to be misunderstood. 11 July 2015. The Jamaica Observer. 21.
  19. News: Ogundipe. Sola. Lagos marches to end 'Endo' pain. 11 July 2015. Vanguard Nigeria. 22.
  20. Web site: EFAonToday - Endometriosis Awareness Turning Today Show Plaza Yellow!. Biz Journals. 11 July 2015. 23.
  21. News: Prioleau. Naomi. ET Woman hopes to educate others about endometriosis. 11 July 2015. The Marshall News Messenger. 24.
  22. News: Endometriosis EndoMarch San Diego CA EndoPositive Global March Saturday March 28. 11 July 2015. EndoPositive™ International. EntSun News.
  23. News: Rizzo . Marian . Ocalan works to raise awareness about endometriosis. 11 July 2015. Ocala Star Banner.
  24. News: Utah woman joins march to raise awareness about endometriosis. 11 July 2015. KTVX Good4Utah.com.
  25. News: Coughlin. Melanie. Local Women March on Washington for a Cause. 11 July 2015. The Pilot.
  26. News: Join the march to help raise awareness about Endometriosis. 11 July 2015. WTVR Virginia This Morning.

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