United Network for Organ Sharing explained

United Network for Organ Sharing
Abbreviation:UNOS
Status:501(c)(3) nonprofit organization[1]
Headquarters:Richmond, Virginia, U.S.
Founded:[2]
Founder:Gene A. Pierce
Tax Id:54-1327878
Services:Manages the U.S. organ transplant system under contract with the federal government by bringing together transplant and organ procurement professionals and volunteers in order to make life-saving organ transplants possible.[3]
Coordinates:37.5479°N -77.4348°W
Employees:394
Employees Year:2015
Volunteers:500
Volunteers Year:2015
Revenue:$57,665,464
Revenue Year:2016
Expenses:$51,727,331
Expenses Year:2016
Leader Name:Brian Shepard
Leader Title:Chief Executive Officer
Leader Name2:David Mulligan, MD, PhD
Leader Title2:President
Subsidiaries:UNOS Foundation (501(c)(3))

The United Network for Organ Sharing (UNOS) is a non-profit scientific and educational organization that administers the only Organ Procurement and Transplantation Network (OPTN) in the United States, established by the U.S. Congress in 1984 by Gene A. Pierce, founder of United Network for Organ Sharing. Located in Richmond, Virginia, the organization's headquarters are situated near the intersection of Interstate 95 and Interstate 64 in the Virginia BioTechnology Research Park.

Activities

United Network for Organ Sharing is involved in many aspects of the organ transplant and donation process:

History

United Network for Organ Sharing was awarded the initial Organ Procurement and Transplantation Network contract on September 30, 1986, and it is the only organization to ever manage the Organ Procurement and Transplantation Network.

United Network for Organ Sharing provides the Organ Procurement and Transplantation Network with a functional, effective management system incorporating the Board of Directors, committees and regional membership to operate OPTN elements and activities.[4]

In late December 2013, it was announced that United Network for Organ Sharing had developed new policies and regulations governing the new field of hand and face transplants like it does standard organ transplants, giving more Americans who are disfigured by injury or illness a chance at reconstruction. In July 2014, government regulations go into effect making hand and face transplants subject to the same oversight by United Network for Organ Sharing as heart or kidney transplants.[5] The rules mean potential transplant recipients will be added to the United Network for Organ Sharing network, for matching of donated hands and face tissue to ensure correct tissue type and compatibility for skin color, size, gender and age. Transplants and their outcomes will be tracked.[6]

In 2020, the Senate Finance Committee launched a bipartisan investigation into UNOS, seeking information into various abuses and patient harms.[7] In 2022, the committee published a bipartisan report concluding that "From the top down, the U.S. transplant network is not working, putting Americans’ lives at risk.".[8] UNOS has also come under intense scrutiny for issues related to outdated and insecure technology,[9] as well as failing to address fatal patient safety risks,[10] anti-patient misinformation.[11]

An investigation by the United States Senate Committee on Finance published in August 2022 catalogs over a thousand complaints from the previous decade, including patient deaths and injuries caused by failures to check for disease and match blood type.[12] At an oversight hearing, Senator Elizabeth Warren pointed out that "UNOS is 15 times more likely to lose or damage an organ in transit as an airline is to lose or damage your luggage."[13] Temperature regulation during transport can also be problematic.[14]

Regions

United Network for Organ Sharing and Organ Procurement and Transplantation Network operate by grouping states into several different regions throughout the country.[15]

  1. Connecticut, Maine, Massachusetts, New Hampshire, Rhode Island, and Eastern Vermont
  2. Delaware, District of Columbia, Maryland, New Jersey, Pennsylvania, West Virginia, and the part of Northern Virginia in the Donation Service Area served by the Washington Regional Transplant Community (DCTC) Organ procurement organization
  3. Alabama, Arkansas, Florida, Georgia, Louisiana, Mississippi, and Puerto Rico
  4. Oklahoma and Texas
  5. Arizona, California, Nevada, New Mexico, and Utah
  6. Alaska, Hawaii, Idaho, Montana, Oregon, and Washington
  7. Illinois, Minnesota, North Dakota, South Dakota, and Wisconsin
  8. Colorado, Iowa, Kansas, Missouri, Nebraska, and Wyoming
  9. New York and Western Vermont
  10. Indiana, Michigan, and Ohio
  11. Kentucky, North Carolina, South Carolina, Tennessee, and most of Virginia

Allocation

United Network for Organ Sharing uses a set policy to remove as much subjectivity as possible from the process of matching organs with recipients (referred to as a "match run").[16] [17] There are several factors that are involved, including, but not limited to:

The individual criteria varies from one organ type to another. For example, with heart and lung transplantation, candidate recipients are given one of four status levels (1A - the highest level, 1B, 2, and 7).[18] A matching born (i.e. not in utero) candidate of Status 1A within the donor region, of matching ABO type, and within 500 miles will be given the highest priority, with multiple matches being ranked by time on the waiting list. Each of those criteria will be progressively relaxed until a match is found.

Some good-quality donated organs are wasted despite about 20 people per day dying while on waiting lists. Critics say this is because once a given set of organs are turned down once or twice, other potential recipients begin to worry that there might be something wrong with them, and eventually the organs are destroyed after thousands of refusals. Excessive conservatism may be the result of evaluating transplant surgeons based on success rate, giving them an incentive only to attempt procedures with the highest probability of success, rather than maximizing the number of lives saved.[19] New rules announced by the Department of Health and Human Services in 2020 aimed to better balance waiting lists in different regions caused by demographic differences in the causes of death.

Membership

United Network for Organ Sharing has five classes of members, with varying levels of rights and obligations.[20]

Leadership

UNOS, and by extension, the OPTN elects its presidents to a one-year term. Prior to serving that term, they serve for one year as Vice President. After their term as President, they then serve for one year as Immediate Past President. This allows for a more orderly transition between leadership.

List of UNOS/OPTN Presidents

External links

Notes and References

  1. "United Network for Organ Sharing". Tax Exempt Organization Search. Internal Revenue Service. Retrieved July 17, 2018.
  2. "United Network for Organ Sharing". Virginia State Corporation Commission. Retrieved July 17, 2018.
  3. "Form 990: Return of Organization Exempt from Income Tax". United Network for Organ Sharing. Guidestar. September 30, 2016.
  4. Web site: UNOS | United Network for Organ Sharing | US Organ Transplantation. UNOS.
  5. Web site: OPTN: Organ Procurement and Transplantation Network . optn.transplant.hrsa.gov . dead . https://web.archive.org/web/20140110205858/http://optn.transplant.hrsa.gov/news/newsDetail.asp?id=1605 . 2014-01-10.
  6. Web site: AP. UNOS To Oversee Hand, Face Transplants Like Organs. WeeklyTimes. 26 December 2013. 26 December 2013.
  7. Web site: Finance Committee Members Probe U.S. Organ Transplant System The United States Senate Committee on Finance . 2023-04-26 . www.finance.senate.gov . en.
  8. Web site: Hearing - - "A System in Need of Repair: Addressing Organizational Failures of the U.S.'s Organ Procurement and Transplantation Network".
  9. News: Thousands of lives depend on a transplant network in need of 'vast restructuring' . 2022-07-31 . . https://web.archive.org/web/20230322172652/https://www.washingtonpost.com/health/2022/07/31/unos-transplants-kindeys-hearts-technology/ . 2023-03-22 . live .
  10. News: 70 deaths, many wasted organs are blamed on transplant system errors . en-US . Washington Post . 2023-04-26 . 0190-8286.
  11. Web site: Heartless: Organ Donation Contractors Lobby Against a Popular Health Care Initiative While Pocketing Pandemic Relief Loans . 2023-04-26 . Project On Government Oversight . 5 October 2020 . en-US.
  12. Web site: Wyden Statement at Finance Committee Hearing on the Urgent Need to Address Failures in the Organ Transplant System The United States Senate Committee on Finance . 2023-04-26 . www.finance.senate.gov . en.
  13. https://www.npr.org/sections/health-shots/2022/08/17/1118009567/damaged-and-diseased-organs-the-agency-overseeing-transplants-faces-intense-scru Transplant agency is criticized for donor organs arriving late, damaged or diseased
  14. Web site: Cambridge company attempts to create 'full service' transit system for organ transplants . 2023-04-26 . www.wbur.org . 8 September 2022 . en.
  15. Web site: United Network for Organ Sharing . 2012-12-13. Organ Procurement and Transplantation Network Bylaws. United Network for Organ Sharing. .
  16. United Network for Organ Sharing. (2013, January 31). OPTN Policy 3.2 - Waiting List. United Network for Organ Sharing. Retrieved from http://optn.transplant.hrsa.gov/policiesAndBylaws/policies.asp
  17. United Network for Organ Sharing. (2013). OPTN Policy. Retrieved from http://optn.transplant.hrsa.gov/policiesAndBylaws/policies.asp
  18. United Network for Organ Sharing. (2013, January 31). OPTN Policy 3.7 - Allocation of Thoracic Organs. Retrieved from http://optn.transplant.hrsa.gov/policiesAndBylaws/policies.asp
  19. Web site: Organ Donation Nonprofits Face New Scrutiny Under Trump Administration Rules . . https://web.archive.org/web/20230511140502/https://www.npr.org/sections/health-shots/2020/12/29/949248556/organ-donation-nonprofits-face-new-scrutiny-under-trump-administration-rules . 2023-05-11 . live .
  20. OPTN Member Directory. (n.d.). OPTN Member Directory. Organ Procurement and Transplantation Network. Retrieved May 1, 2013, from http://optn.transplant.hrsa.gov/members/search.asp
  21. News: 2020-08-31. In Memoriam: G. Melville Williams, M.D.. 2021-01-07. UNOS. en-US . Cindyyoung .
  22. Web site: New board members elected in 2021 - OPTN .

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