Solve ME/CFS Initiative explained

Abbreviation:SMCI, CFIDS
Predecessor:Chronic Fatigue Immune Dysfunction Syndrome (CFIDS) Association of America
Formation:1987
Founders:-->
Dissolved:-->
Type:NGO
Status:Charity
Location:Los Angeles, California, United States
Region Served:-->
Languages:-->
Leader Title:President and CEO
Leader Name:Oved Amitay
Leader Title2:Vice President of Advocacy and Engagement
Leader Name2:Emily Taylor
Leader Title4:Medical Advisor
Leader Name4:David Hardy
Publication:-->
Parent Organisation:-->
Staff:10
Staff Year:2020

The Solve ME/CFS Initiative (Solve M.E.) is an American nonprofit that does research and advocacy for myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), Long COVID, and other post-infectious diseases. Their stated mission is to assist research into ways to diagnose, treat, or cure these conditions. They also advocate for increased awareness, public funding of research, and access to medical care for patients.

History

Solve M.E. was founded in 1987[1] [2] as the Chronic Fatigue Immune Dysfunction Syndrome (CFIDS) Association of America, and changed to its current name in the spring of 2014.[3] Oved Amitay was named president and chief executive officer on June 1, 2020.[4] He was preceded by Carol Head, who served as CEO and President from 2013 to 2019. The chair of the board of directors is John Nicols.

Activities

Solve M.E. funds research through their Ramsay Research Grant program, whose stated aims are to attract new researchers and fund pilot studies that could lead to researchers getting funding from other sources.[5] They maintain a biobank called the You + M.E. Registry, which stores blood samples and self-reported data from people with ME/CFS, people with long COVID, and healthy controls.[6] They perform advocacy activities, such as contacting elected officials, and publishing materials for patients. They are a member of the DecodeME, a genetic study of ME/CFS, and the Long COVID Alliance, an advocacy organization for long COVID.

External links

Notes and References

  1. Web site: GuideStar Exchange Reports for Solve ME/CFS Initiative, Inc.. 14 September 2014.
  2. Web site: Charity Navigator Rating - Solve ME/CFS Initiative. Charity Navigator. 14 September 2014.
  3. News: Same mission. New name.. SolveCFS Chronicle. Spring 2014.
  4. M.E . Solve . Solve M.E. Announces Oved Amitay as President and Chief Executive Officer . 2022-03-30 . www.prnewswire.com . en.
  5. Web site: Ramsay Research Grants . 2022-07-03 . Solve ME/CFS Initiative . en-US.
  6. Web site: Home-Page . 2022-07-03 . You + M.E. . en-US.