Neuroendocrine Tumor Research Foundation Explained

Neuroendocrine Tumor Research Foundation
Size:small
Abbreviation:NETRF
Formation:2005
Type:Nonprofit corporation
Headquarters:Boston, Massachusetts, United States
Leader Title:Chief Executive Officer
Leader Name:Elyse Gellerman
Key People:John Kanki, Director of Research Susan Payson, Chief Development Officer Christine Coffey, Director of Communications
Revenue:$17,040,511[1]
Revenue Year:2015
Expenses:$1,165,910
Expenses Year:2015
Website:www.netrf.org

The Neuroendocrine Tumor Research Foundation (NETRF), previously known as the Caring for Carcinoid Foundation (CFCF), is a nonprofit corporation organized under the laws of Massachusetts in order to support neuroendocrine and carcinoid cancer research in the public interest. The mission of NETRF is to fund research to discover cures and more effective treatments for carcinoid, pancreatic, and related neuroendocrine cancers. The specific objectives and purposes of the foundation are to support doctors and scientists who are researching the causes of carcinoid[2] and related neuroendocrine tumors and developing treatments; and to inform the public about research and treatments.[3] According to non-profit information hub Candid, NETRF has spent $36 million supporting research since 2005, as of December 2023. The organization also produces its own educational podcast, Netwise.[4] The foundation is accredited by the Better Business Bureau.[5]

The foundation was founded in 2004 by Nancy Lindholm (formerly Nancy O'Hagan), who was a carcinoid patient.[6] [7] It is located in Boston.[8] On November 10, 2010, the foundation celebrated the first annual Worldwide Neuroendocrine Tumor (NET) Cancer Awareness Day by launching their new website, which provides comprehensive information for family and friends.[9] From time to time the foundation makes grants available jointly with the American Association for Cancer Research.[10] On other occasions, the foundation acts in conjunction with other grant providers[11] or as the sole grant provider.[12] [13] In 2015, the organization officially changed its name to the Neuroendocrine Tumor Research Foundation and its website to www.netrf.org.

External links

Notes and References

  1. Web site: Caring for Carcinoid Foundation . 15 November 2016 . Foundation Center . 30 June 2017 .
  2. Web site: Carcinoid syndrome: MedlinePlus Medical Encyclopedia . Nlm.nih.gov . May 16, 2008 . November 10, 2011.
  3. Web site: The Caring for Carcinoid Foundation Celebrates Worldwide Neuroendocrine Tumor Cancer Awareness Day with... – BOSTON, Nov. 10, 2010 /PRNewswire-USNewswire/ . Massachusetts . Prnewswire.com . November 10, 2011.
  4. Web site: Neuroendocrine Tumor Research Foundation . Candid . n.d. . Candid . 2023-12-28.
  5. Web site: Charity Review of Caring for Carcinoid Foundation . Bbb.org . December 31, 2009 . November 10, 2011.
  6. Web site: Founder Nancy Lindholm | Caring for Carcinoid Foundation . Caringforcarcinoid.org . November 10, 2011 . dead . https://web.archive.org/web/20111114192251/http://www.caringforcarcinoid.org/about-cfcf/founder-nancy-lindholm . November 14, 2011 . mdy .
  7. http://www.dana-farber.org/abo/news/publications/pop/fall-winter-2006/translation-please-2.html
  8. Web site: Frequently Asked Questions | Caring for Carcinoid Foundation . Caringforcarcinoid.org . November 10, 2011 . dead . https://web.archive.org/web/20111114232032/http://www.caringforcarcinoid.org/faq . November 14, 2011 . mdy .
  9. http://www.centredaily.com/2010/11/10/2331580/the-caring-for-carcinoid-foundation.html{{dead link|date=November 2016 |bot=InternetArchiveBot |fix-attempted=yes }}
  10. Web site: Caring for Carcinoid Foundation-AACR Grants for Carcinoid Tumor and Pancreatic Neuroendocrine Tumor Research . 2010-11-12 . dead . https://web.archive.org/web/20100901082946/http://www.aacr.org/home/scientists/research-funding--fellowships/caring-for-carcinoid-foundation-aacr-grants-for-carcinoid-tumor-and-pancreatic-neuroendocrine-tumor-research.aspx . September 1, 2010 . mdy .
  11. Web site: January 19, 2006. Drug combination shows promise for treatment of advanced neuroendocrine tumors. dead. November 14, 2010. https://web.archive.org/web/20080516031934/http://www.dana-farber.org/abo/news/press/drug-combination-shows-promise-for-treatment-of-advanced-neuroendocrine-tumors.html. May 16, 2008.
  12. Web site: Carcinoid Tumor Research Grant Of $250,000 Received By Researcher At M. D. Anderson Cancer Center . Medicalnewstoday.com . November 10, 2011.
  13. Web site: Tufts-NEMC Physician-Researcher Andrew Leiter, MD, PhD, Is Awarded 250,000 Dollars Carcinoid Tumor Research Grant . Medicalnewstoday.com . November 10, 2011.

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