Les Turner ALS Foundation explained

Type:non-profit
Purpose:ALS research, awareness, and patient services
Key People:Laura Freveletti, Chief Executive Officer [1]
Affiliations:International Alliance of ALS/MND Associations
Les Turner ALS Foundation
Founder:Les Turner
Website:lesturnerals.org
Location:Chicago, Illinois
Founded:1977

The Les Turner ALS Foundation is a non-profit organization based in Chicago that provides amyotrophic lateral sclerosis (ALS) patient services; supports events, education and awareness about ALS; and funds ALS research.[2] Since it was founded, it has raised over $64 million.[3]

History and programs

The Foundation was founded by Les Turner, a Chicago businessman, and his family after he was diagnosed with amyotrophic lateral sclerosis (ALS) in 1976.[4] Les Turner serves nearly 90 percent of ALS patients in the Chicago metropolitan area.[5]

In 1979, the Les Turner ALS Research Laboratory was opened at Northwestern Medicine. Then, in 1986, the Lois Insolia ALS Clinic was opened at Northwestern to provide patient services. It was one of the first multidisciplinary ALS clinics opened in the United States. Currently, in addition to medical care, the clinic offers access to clinical trials and research studies.[6]

In 1983, the Foundation started patient support groups.[7] The groups are now offered online at no cost.[8]

In 1992, Les Turner ALS became a founding member of the International Alliance of ALS/MND Associations.

In 2002, the Foundation's main event, the ALS Walk for Life was started.[9]

In 2014, the Les Turner ALS Center at Northwestern Medicine was created to "accelerate research and advance patient care". The Center was opened in addition to the continual operation of three research laboratories and the Lois Insolia ALS Clinic.[10] Among the Center's contributions to ALS research have been the 1993 co-discovery of the first genetic mutation linked to cause ALS, SOD1,[11] [12] as well as FUS in 2009[13] [14] and others linked to familial ALS.

In 2015, Les Turner ALS released the campaign, "Freeze ALS", along with 12 ice sculptures around Chicago for ALS Awareness Month.[15] [16]

Further reading

External links

Notes and References

  1. Web site: Les Turner ALS Foundation Names Laura Freveletti as New Chief Executive Officer. Les Turner ALS Foundation. 13 March 2023 . en-US. 2023-10-19.
  2. Web site: About the Foundation. Les Turner ALS Foundation. en-US. 2016-04-29.
  3. Web site: Our impact on ALS research & support. Les Turner ALS Foundation. en-US. 2016-04-29.
  4. Web site: History and Mission. Les Turner ALS Foundation. en-US. 2016-04-29.
  5. Web site: Gala raises $550,000 for Les Turner ALS Foundation. Litas. Lee. 2016-03-15. Chicago Tribune. 2016-04-29.
  6. Web site: Lois Insolia ALS Clinic. Les Turner ALS Foundation. en-US. 2016-04-29.
  7. Web site: History and Mission . 2015-10-04 . Les Turner ALS Foundation (Internet Archive) . 2016-04-29 . unfit . https://web.archive.org/web/20151004213717/http://www.lesturnerals.org/about-the-foundation/history-and-mission/ . October 4, 2015 .
  8. Web site: Free ALS support groups . 2023-12-08 . Les Turner ALS Foundation .
  9. Web site: ALS Walk for Life returns to Soldier Field. 2015-09-26. ABC7 Chicago. 2016-04-29.
  10. Web site: Les Turner ALS Foundation Commits $10 Million for New Center. Association of Schools and Programs of Public Health. 2016-04-29.
  11. Rosen DR, Siddique T, Patterson D, Figlewicz DA, Sapp P, Hentati A, Donaldson D, Goto J, O'Regan JP, Deng HX . 6 . Mutations in Cu/Zn superoxide dismutase gene are associated with familial amyotrophic lateral sclerosis . Nature . 362 . 6415 . 59–62 . March 1993 . 8446170 . 10.1038/362059a0 . 265436 . 1993Natur.362...59R .
  12. Web site: Les Turner ALS Center at Northwestern Medicine. 2023-12-08. Les Turner ALS Foundation.
  13. Web site: Researchers Identify ALS Gene Mutation. 2009-03-09. Feinberg School of Medicine.
  14. Kwiatkowski TJ, Bosco DA, Leclerc AL, Tamrazian E, Vanderburg CR, Russ C, Davis A, Gilchrist J, Kasarskis EJ, Munsat T, Valdmanis P, Rouleau GA, Hosler BA, Cortelli P, de Jong PJ, Yoshinaga Y, Haines JL, Pericak-Vance MA, Yan J, Ticozzi N, Siddique T, McKenna-Yasek D, Sapp PC, Horvitz HR, Landers JE, Brown RH . Mutations in the FUS/TLS Gene on Chromosome 16 Cause Familial Amyotrophic Lateral Sclerosis . Science . 323 . 5918 . 1205–1208 . February 2009 . 19251627 . 10.1126/science.1166066 . 2009Sci...323.1205K . 12774563 .
  15. Web site: Ice sculptures come to Northwestern to raise awareness for ALS, following success of Ice Bucket Challenge. Pager. Tyler. 2015-05-08. The Daily Northwestern. 2016-04-29.
  16. Web site: ALS Awareness Month. Les Turner ALS Foundation. en-US. 2016-04-29.

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