John Davidson (Tourette syndrome campaigner) explained

John Davidson
Honorific Suffix:MBE
Birth Date:1 June 1971[1]
Birth Place:Galashiels, Scotland
Education:Galashiels Academy
Occupation:Campaigner
Years Active:1989–present

John Davidson MBE (born 1 June 1971) is a Scottish campaigner for Tourette syndrome, who lives in Galashiels. At age 16, Davidson was the subject of the BBC TV documentary John's Not Mad (1989) about the manifestations of Tourette syndrome with which he lived, and a number of follow-up BBC documentaries throughout his life.[2] [3] [4] He is a "nationally known ambassador for the condition", who gives talks and workshops for school pupils, teachers and police, and has organised an annual two-day residential Tourette camp for young people. In 2019 he was awarded an MBE in recognition of "his efforts to increase understanding of the condition and helping families deal with it across the country."[5]

Biography

Davidson's condition encompasses a range of symptoms: Tourette syndrome tics including coprolalia, echolalia, sudden and violent body movements; as well as a severe form of obsessive–compulsive disorder (OCD). At age 16 a BBC TV documentary was made about him, John's Not Mad (1989), which "became a major talking point" nationally[6] —in 2004 The Times reported that "Davidson occupies a position in the psyche of 1980s schoolchildren similar to that of the Joey Deacon, who had cerebral palsy, for the kids of the 1970s. Both were the subjects of serious television programmes about their disabilities, and both promptly became the victims of nationwide playground mocking campaigns."[7] [6] A follow-up BBC TV documentary was made about him at age 30, The Boy Can't Help It (2002), and another, (2009), caught up with him at age 37.[8]

After leaving school at age 16 without qualifications,[6] Davidson has worked his whole life as a caretaker at Langlee Community Centre in Galashiels.[6] [9] [10] He has also done a lot of voluntary youth work. As of 2002 he was a part-time youth leader at Loganlea Community Centre and education complex in Galashiels.[10]

Since the broadcast of John's Not Mad, Davidson went on to become a "nationally known ambassador for the condition",[9] "a spokesman for this previously hidden neurological disorder, campaigning to educate people about it."[6] In 2003 he founded a Borders support group aimed at helping the families of those with the condition.[11] Working with support groups such as Tourette Scotland and national organisation Tourettes Action he has visited schools, given talks,[12] and held workshops on living with Tourette syndrome,[8] and spoken to groups of police and school teachers on supporting people with the condition. He has organised an annual two-day residential Tourette camp for young people in Galashiels:[11] [9]

"People who feel isolated in their own town can come to Galashiels for a weekend and feel part of a like-minded tribe," said John. "They can shout as loud as they like without worrying about upsetting or offending others. Hopefully, they return to their homes in better fettle and feeling stronger and less isolated."[9]
As of 2019 he was a board member of Tourette Scotland.[13] In 2019 he was awarded an MBE in recognition of "his efforts to increase understanding of the condition and helping families deal with it across the country."[5] [14] [15] He has also been a leading member of Borders Action Group, campaigning to save public services.[10]

Films

External links

Notes and References

  1. Web site: Tourette's documentary 'the best so far' says inspirational John . Border Telegraph . 16 January 2017 . 8 August 2022 . en.
  2. News: Penny. Wark. 2020-02-25. John's not mad. He's fine. . 0140-0460. www.thetimes.co.uk.
  3. Web site: Brian. McIver. 2020-02-25. Tourette's sufferers hope film will help dispel myths of condition. 23 May 2012. dailyrecord.
  4. News: 2020-03-10. He swears hes happier. . 0140-0460. www.thetimes.co.uk.
  5. News: 2020-02-25. Meeting the Queen when you've got Tourette's. BBC News. 10 July 2019.
  6. News: 2020-02-25. What happened to the boy with Tourette's?. 28 May 2009. news.bbc.co.uk.
  7. News: 31 March 2004. Penny. Wark. 2020-02-25. John's Not Mad (E). . 0140-0460. www.thetimes.co.uk.
  8. Web site: 2020-02-25. BBC documentary to focus on Tourette's friendship in the Borders. Border Telegraph. 21 December 2016 .
  9. Web site: 2020-03-08. Tourette's documentary 'the best so far' says inspirational John. Border Telegraph. 16 January 2017 .
  10. News: Stephen. Khan. 2020-02-25. Tourette's sufferer rails against cuts. The Observer. 3 March 2002. 0029-7712. www.theguardian.com.
  11. Web site: 2020-03-11. Calls going out for reward for Borders Tourette's campaigner's work. www.thesouthernreporter.co.uk.
  12. Web site: 2020-03-11. Borderers are rewarded by the Queen in the New Year Honours List. www.thesouthernreporter.co.uk.
  13. Web site: Robbie. Chalmers. 2020-03-10. Tourette charity hope to set up local group. 22 January 2019. dailyrecord.
  14. Web site: 2020-02-25. Scot's Tourette's struggle to become film. www.scotsman.com.
  15. Web site: 2020-02-25. Sworn allegiance. www.scotsman.com.
  16. Web site: 2020-02-25. The Boy Can't Help It (2002). https://web.archive.org/web/20200225194629/https://www.bfi.org.uk/films-tv-people/4ce2b87b2c998. dead. February 25, 2020. BFI.
  17. News: Robert. Collins. 2020-02-25. The One to Watch: Thursday 28 May. The Daily Telegraph . 27 May 2009. 0307-1235. www.telegraph.co.uk.
  18. Web site: 2020-02-25. BBC One - Tourettes: I Swear I Can't Help It. BBC.
  19. Web site: 2020-02-25. Sky l Vision – Sky's production and distribution arm. skyvision.sky.com.
  20. Web site: 2020-02-25. BBC Three - Tourettes: Teenage Tics. BBC.
  21. Web site: 2020-03-09. What is my movie? - Item. www.whatismymovie.com.