The Michael J. Fox Foundation Explained

The Michael J. Fox Foundation for Parkinson's Research
Status:501(c)(3) Non-profit
Founded:[1]
Founder:Michael J. Fox
Fields:Parkinson's disease clinical research
Purpose:Funding research for better treatments and a cure for Parkinson's disease[2]
Tax Id:13-4141945
Abbreviation:MJFF
Headquarters:New York City, U.S.
Leader Name:Skip Irving[3]
Leader Title:Chairman
Leader Name2:Deborah W. Brooks
Leader Title2:Chief Executive Officer
Affiliations:MJFF Canada

The Michael J. Fox Foundation for Parkinson's Research is a US non-profit organization founded in 2000 by Canadian-American actor Michael J. Fox to find a cure for Parkinson's disease.

Business model

The organization funds grants directly to scientists it assesses as having the best chance of finding a cure. It maintains closer control over and supervision of projects than is typical from other medical-research foundations.[4]

Fundraising

In 2006 it was the "largest private funder of research" into Parkinson's, according to The Guardian.[5], it had raised $2 billion for Parkinson's research projects.[6] [7] According to Town and Country, in 2022 the organization funded more Parkinson's research than the US government. According to Fox Business, it is the largest nonprofit funder of Parkinson's research in the world.[8]

Work

In 2023, a longitudinal study funded by the organization, the Parkinson's Progression Markers Initiative, released results in Lancet Neurology showing Parkinson's can be detected by the presence of a biomarker protein, abnormal alpha-synuclein.[9] [10] [11] The biomarker can be detected before the onset of symptoms.[12]

The organization hosts the Fox Trial Finder, a website for presenting clinical trials in Parkinson's disease research.[13]

Notes and References

  1. "The Michael J. Fox Foundation for Parkinson's Research ". Division of Corporations. Delaware Department of State. Accessed on May 18, 2016.
  2. "Form 990: Return of Organization Exempt from Income Tax". The Michael J. Fox Foundation for Parkinson's Research. Guidestar. December 31, 2014.
  3. Web site: Skip Irving Parkinson's Disease . 2022-12-26 . www.michaeljfox.org . en . 2022-12-26 . https://web.archive.org/web/20221226082828/https://www.michaeljfox.org/bio/skip-irving . live .
  4. Web site: Piller . Charles . 2016-08-30 . As Parkinson's patients wait, Fox Foundation and scientist feud over drug trial . 2024-01-20 . . en-US.
  5. News: . Radio host apologises for claim Michael J Fox faked symptoms . Ed . Pilkington . October 20, 2006.
  6. News: Burleson . Nate . Breen . Kerry . Michael J. Fox talks funding breakthrough research for Parkinson's disease . January 20, 2024 . . November 9, 2023 . https://web.archive.org/web/20231124035355/https://www.cbsnews.com/news/michael-j-fox-parkinsons-research-funded-by-his-foundation/ . November 24, 2023 . live.
  7. Web site: Goldman . Andrew . 2023-11-02 . Michael J. Fox Didn't Get Mad, He Got Motivated . 2024-01-20 . . en-US.
  8. Web site: Genovese . Daniella . 2019-09-30 . Billionaire Ken Griffin, Michael J. Fox Foundation stage $10M competition for 'game-changing' Parkinson's research . 2024-01-20 . . en-US.
  9. Web site: Hodgson . J. L. . 2023-04-17 . Michael J. Fox's foundation finds groundbreaking discovery about Parkinson's . 2024-01-20 . . en-us.
  10. News: Schnell . Mychael . 2021-12-02 . Michael J. Fox Foundation studying early signs of Parkinson's disease . 2024-01-20 . . en-US.
  11. Web site: Paynter . Ben . 9 May 2018 . Michael J. Fox's Foundation Is Using This Alphabet Smartwatch To Research Parkinson's . Fast Company.
  12. Web site: Michaud . Mark . What You Need to Know about the New Parkinson's Biomarker . 2024-01-20 . . en-us.
  13. Weiner . Michael W. . Nosheny . Rachel . Camacho . Monica . Truran-Sacrey . Diana . Mackin . R. Scott . Flenniken . Derek . Ulbricht . Aaron . Insel . Philip . Finley . Shannon . Fockler . Juliet . Veitch . Dallas . August 2018 . The Brain Health Registry: An internet-based platform for recruitment, assessment, and longitudinal monitoring of participants for neuroscience studies . . 14 . 8 . 1063–1076 . 10.1016/j.jalz.2018.02.021 . 1552-5260 . 6126911 . 29754989.