Children's Craniofacial Association Explained

The Children's Craniofacial Association (CCA) is a United States-based nonprofit organization supporting individuals and families with facial disfigurements. CCA is a family support organization recognized by governmental, educational and medical healthcare agencies across the US.^{[1] [2] [3]}

Children's Craniofacial Association's National Spokesperson is actor, entertainer Cher

Cher became CCA's National Spokesperson in 1990. In 1985, Cher starred in the movie Mask,a film about the life of Rocky Dennis, who had a rare craniofacial condition called Craniodiaphyseal Dysplasia. Cher attended an event in Washington, DC in September 1990, where families affected by craniofacial conditions testified before the House Budget Committee. During that week, she joined ten families on a visit to the White House hosted by then, First Lady, Barbara Bush. During her Love Hurts, Believe and Farewell Tours, Cher often invited children with craniofacial conditions back stage to visit.

Publications

Quarterly Newsletter

CCA publishes a quarterly newsletter containing articles written by craniofacial surgeons, healthcare providers, family members and others.

See also

• Goldenhar syndrome
• Peter Dankelson

Notes and References

1. Web site: Patient Organizations - National Institute of Neurological Disorders and Stroke. www.ninds.nih.gov.
2. http://www.uic.edu/com/surgery/plastic/patient_craniofacial.htm Members of the Center also work closely with national organizations such as AboutFace USA, The Children's Craniofacial Association, FACES, The National Foundation of Ectodermal Dysplasia, the Cleft Palate Foundation, and The Smile Train to provide resources and support for patients with facial differences and their family members.
3. Web site: Facial/ craniofacial anomalies. www.kumc.edu.