Brittle Bone Society Explained

About

Brittle Bone Society
Formation:1968
Registration Id:272100
Focus:Medical research, patient support
Headquarters:Dundee, Scotland
Leader Title:Founder
Leader Name:Dr. Margaret Grant
Leader Title2:Chief Executive
Leader Name2:Patricia Osborne
Website:https://www.brittlebone.org

The Brittle Bone Society[1] is the only UK wide charity dedicated to providing support to people affected by osteogenesis Imperfecta (OI).

Background

The Brittle Bone Society was established in 1968 in Dundee by Margaret Grant, who has OI. When she was young, Grant was aware that there was virtually no support for people with OI and that many medical professionals knew little or nothing about the condition. When her daughter Yvonne was born some years later, very little had changed. For many years Grant was the driving force of the society, which was recognised when she was awarded an MBE in 1989[2] and in 2018 when she was awarded an honorary degree from the University of Dundee.[3]

The society now has more than 1,000 members and works closely with specialist medical units and other professionals throughout the UK.

The CEO is Patricia Osborne who has been working with the charity since 2009[4]

The society's archives, which include about thirty boxes of material, are held by the University of Dundee.[5]

Notes and References

  1. Web site: THE BRITTLE BONE SOCIETY - Charity 272100 . 2024-04-14 . register-of-charities.charitycommission.gov.uk . en-GB.
  2. News: 2024-04-14 . Margaret Grant, 87: Music-loving founder of OI charity . 2024-04-14 . en . 0140-0460.
  3. Web site: Honorary Degrees. University of Dundee . 21 January 2020.
  4. Web site: BBS . Our Team . 2024-04-14 . BBS . en-GB.
  5. Web site: Brittle Bone Society Archive comes to the University of Dundee. Archives Records and Artefacts at the University of Dundee. 7 September 2010 . University of Dundee. 25 October 2013.
    - Web site: MS 327 Brittle Bone Society Archives. Archive Services Online Catalogue. University of Dundee. 14 April 2015.