Epilepsy Action Explained

Epilepsy Action
Services:Epilepsy advice and information
Formation:[1]
Type:Charitable organisation
Registration Id:234343
Headquarters:Yeadon, West Yorkshire, United Kingdom
Coords:53.8644°N -1.6941°W
Membership:7,494[2]
Membership Year:2023
Leader Title:President
Leader Name:Margaret Ford, Baroness Ford
Leader Title2:Chair
Leader Name2:Jane Riley[3]
Leader Title3:Chief executive
Leader Name3:Philip Lee
Revenue:£2.77m
Revenue Year:2023
Staff:75
Staff Year:2023
Founder:Lady Cynthia Colville
Former Name:British Epilepsy Association (1950-2002)

Epilepsy Action is a British charity providing information, advice and support for people with epilepsy.

Activities

Epilepsy Action provides freephone and email helplines and a wide range of information booklets, web pages and e-learning courses. It has around 100 local support groups across England, Wales and Northern Ireland and a network of volunteers working in the community. It also organises conferences for people with epilepsy and health professionals with an interest in the condition. It also has a website that includes information about epilepsy.

It undertakes and encourages non-laboratory research into epilepsy and the issues surrounding living with the condition.

Since 2008, the charity has organised the annual Bradford 10K athletics race which in 2019 attracted 3,000 runners.[4]

Campaigns

The charity has received international media coverage on a number of occasions due to its work in highlighting bad practice in online videos in relation to photosensitive epilepsy.

External links

Notes and References

  1. Web site: Epilepsy Action History Wall 1950-2010 . Epilepsy Action . 16 March 2023 . https://web.archive.org/web/20151004083030/https://www.epilepsy.org.uk/sites/epilepsy/files/images/about/epilepsyaction-historywall.pdf . 4 October 2015.
  2. Web site: TRUSTEES’ REPORT AND FINANCIAL STATEMENTS FOR THE YEAR ENDED 31 DECEMBER 2023 . Epilepsy Action . 19 May 2024.
  3. Web site: Council of Management . Epilepsy Action . 17 March 2023.
  4. News: 17 March 2019. '3,000 runners tackle Bradford's biggest ever 10K'. Telegraph and Argus. 26 February 2020.
  5. News: Olympics inquiry into logo-launch seizures. Bond. David. 13 June 2007. en-GB. 0307-1235.
  6. News: London 2012 Olympics withdraw film after seizures . 24 March 2023 . Epilepsy Action . 6 June 2007 . https://web.archive.org/web/20071123111401/http://www.epilepsy.org.uk/news/archive/20070605.html . 23 November 2007.
  7. News: 'Kanye West's 'All Of The Lights' Video Gets Epilepsy Warning'. https://web.archive.org/web/20140505200135/http://www.mtv.com/news/1658702/kanye-west-all-of-the-lights-music-video/. dead. 5 May 2014. MTV News. 25 February 2011.
  8. News: 'Epilepsy charity criticises Twitter for flashing ads'. BBC News. 10 July 2015.