Ben's Friends Explained

Ben's Friends is an American non-profit organization that serves people with rare diseases.[1] [2] It was founded in 2007 by Ben Munoz and Scott Orn[3] and was granted 501(c)(3) nonprofit status on February 9, 2014.[4] It is headquartered in Austin, Texas.

Ben's Friends runs over 30 online communities, each focused on a specific rare disease or chronic illness. Its mission is to provide patients living with rare diseases or chronic illnesses, as well as their caregivers, family, and friends, a place to connect with others. Ben's Friends communities are managed by approximately 100 volunteer moderators, most of whom are patients themselves.[5] The organization was founded in 2007 by Ben Munoz and Scott Orn during Munoz's recovery from a rare brain aneurysm caused by an arteriovenous malformation (AVM). In early 2008, Munoz and Orn started two more communities, Living With Ataxia and Living With Trigeminal Neuralgia. Ben's Friends has served over 50,000 members, with more than 100,000 online visitors to the communities each month.[6]

A few of the larger Ben's Friends communities:

Notes and References

  1. Web site: Orn . Scott . Deliver Big Impact on a Small Budget - Scott Orn - Harvard Business Review . Blogs.hbr.org . 2013-03-18 . 2013-12-17.
  2. Web site: Big Impact On A Small Budget: Ben's Friends Wants To Build A Web & Mobile Support Network For Every Rare Disease . TechCrunch . 2013-05-31 . 2013-12-17.
  3. Web site: Med student starts website for patients with rare diseases - Houston Chronicle . Chron.com . 2013-05-23 . 2013-12-17.
  4. Web site: Ben's Friends | Patient Support Communities for People with Rare Diseases . Bensfriends.org . 2013-03-01 . 2013-12-17.
  5. Web site: From Start-up to Scale – Conversations from the Harvard Business Review . December 9, 2013 . dead . https://web.archive.org/web/20140304212935/http://www.bridgespan.org/getmedia/2e3147b3-939e-45b7-b7b2-dd7c959e1d9f/From-Start-up-to-Scale.pdf . March 4, 2014 . Bridgespan Insight Center on Scaling Social Impact.
  6. Web site: BCM Office of Communications . Coping through connection: Rare disease support communities | Momentum - The Baylor College of Medicine Blog . Momentumblog.bcm.edu . 2013-12-17.
  7. Web site: We are AVM survivors, here for your support . December 9, 2013 . dead . https://web.archive.org/web/20131105084617/http://www.avmsurvivors.org/ . November 5, 2013 . AVM Survivors Network.
  8. Web site: We are patients living with Trigeminal Neuralgia, here for your support. . December 9, 2013 . dead . https://web.archive.org/web/20131203184257/http://www.livingwithtn.org/ . December 3, 2013 . Living with TN.
  9. Web site: Ataxia Support . LivingWithAtaxia.org.
  10. Web site: Adrenoleukodystrophy (ALD) Online Support Group . Adrenoleukodystrophysupport.org . 2014-02-26.
  11. Web site: Living With Fibromyalgia - Online Support Group .
  12. Web site: Brain Aneurysm Support Community . December 9, 2013 . dead . https://web.archive.org/web/20131113000750/http://www.bafsupport.org/ . November 13, 2013 . The Brain Aneurysm Foundation.

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