Belangenvereniging van Kleine Mensen explained

Belangenvereniging van Kleine Mensen (BVKM)
Founded:1973
Area Served:Netherlands
Location:Hoofddorp, Netherlands
Focus:The bvkm provides information about disability rights, medical issues, and practical matters for patients with skeletal dysplasia.
Num Members:350 (July 2023)
Website:http://www.bvkm.nl/

The Belangenvereniging van Kleine Mensen (BVKM)(English: Interest Association of Little People) is the Dutch Patients' Organization for little people and patients with skeletal dysplasia.[1] [2] The association focuses on individuals with one or more of the two hundred medical conditions falling under the category of dwarfism.[3] Most members have a demonstrable growth disorder and are shorter than 155 cm.[4] [5] Volunteers are responsible for the organization.

Establishment

The BVKM was founded in December 1973 by Lenie Voorn (née Matton),[6] as a Dutch organization providing support and information to people of short stature and their families. Within a year and a half of its establishment, 500 little people had become members, and the association now had a social worker and a psychologist. It became clear that the challenges for little people were much larger than initially thought. Housing, clothing, public transportation, and job applications turned out to lead to many mental and practical problems.[7]

Goals

The main goal of the association is to provide support to little people so that they can take a full and equal place in society.[8] [9] [10]

Other goals of the association include:

Activities

Members and directly involved individuals can receive information, get to know each other, and share experiences, with the association playing a supportive role.[12] [13]
The association focuses on increasing general knowledge about various growth disorders, striving for equal treatment in society, and advocating for normalization that embraces diversity[14] [15] [16]

The Sports Committee organizes events in collaboration with entities such as the Dirk Kuyt Foundation and De Hoogstraat Rehabilitation.[17]

Collaborations

The association, as a patient organization for skeletal dysplasia, maintains close contact with institutions such as Wilhelmina Children's Hospital, UMCU, MUMC+, and LUMC.[18]

Partners

The BVKM collaborates with external parties, including:

Sister associations

Sports associations

External links

Notes and References

  1. Web site: Orphanet: BVKM Belangenvereniging van Kleine Mensen . VOORBEHOUDEN . INSERM US14-- ALLE RECHTEN . 2023-11-20 . www.orpha.net . nl.
  2. Web site: Growth Disorders: information about organizations . 2023-11-20 . www.patientenfederatie.nl . en.
  3. Web site: Osteogenesis imperfecta (OI) Erfelijkheid.nl . 2023-11-19 . www.erfelijkheid.nl.
  4. Web site: Interest Association of Little People . 2023-11-20 . Nuenen Helps . nl.
  5. Web site: Achondroplasia Erfelijkheid.nl . 2023-11-19 . www.erfelijkheid.nl.
  6. https://www.delpher.nl/nl/kranten/view?query=Belangenvereniging+kleine+mensen&facets%5Bperiode%5D%5B%5D=2%7C20e_eeuw%7C1970-1979%7C1973%7C&page=1&coll=ddd&identifier=ddd:011236737:mpeg21:a0253&resultsidentifier=ddd:011236737:mpeg21:a0253&rowid=3 Association of Little People
  7. https://www.delpher.nl/nl/kranten/view?query=Belangenvereniging+kleine+mensen&coll=ddd&page=1&facets%5Bperiode%5D%5B%5D=2%7C20e_eeuw%7C1970-1979%7C1973%7C&facets%5Bperiode%5D%5B%5D=2%7C20e_eeuw%7C1970-1979%7C1974%7C&identifier=ddd:011016839:mpeg21:a0090&resultsidentifier=ddd:011016839:mpeg21:a0090&rowid=2 Little people often have big problems
  8. Web site: Social map Netherlands Interest Association of Little People (BVKM) . 2023-11-20 . landelijk.socialekaartnederland.nl.
  9. Web site: ‘I consciously don't call myself a little man because I am not my limitation’ . 1 March 2022 . 2023-11-19 . de Volkskrant.
  10. https://www.delpher.nl/nl/kranten/view?facets%5Bperiode%5D%5B%5D=2%7C20e_eeuw%7C1970-1979%7C1979%7C&query=Belangenvereniging+kleine+mensen&coll=ddd&page=1&identifier=ABCDDD:010825129:mpeg21:a0205&resultsidentifier=ABCDDD:010825129:mpeg21:a0205&rowid=2 Draftee is discriminated against for height
  11. Web site: Interest Association of Little People . Zeldzaam . Zicht op . 2023-11-21 . Zicht op Zeldzaam . nl.
  12. Web site: About SD Alliance . 2023-11-19 . Skeletal Dysplasias Alliance . en.
  13. https://www.delpher.nl/nl/kranten/view?facets%5Bperiode%5D%5B%5D=1%7C20e_eeuw%7C1970-1979%7C&query=Belangenvereniging+kleine+mensen&coll=ddd&identifier=ddd:010620686:mpeg21:a0270&resultsidentifier=ddd:010620686:mpeg21:a0270&rowid=1 "Speaker's Corner" about little people
  14. "We stand up against prejudices" by Marijke Hultzer. "De Telegraaf". Amsterdam, 2 June 1979, p. 19. Retrieved from Delpher on 21 November 2023, https://resolver.kb.nl/resolve?urn=ddd:011200356:mpeg21:p019
  15. Web site: Achondroplasia: big stigmas but not to belittle . 26 September 2023 . 2023-11-20 . Planet Health . nl.
  16. https://www.patientenfederatie.nl/index.php?external=kennisbank,%20https://kennisbank.patientenfederatie.nl/app/answers/detail/a_id/2562/~/groeistoornissen%3A-informatie-over-organisaties Information about organizations
  17. Web site: Skeletal Dysplasia in children . 2023-11-19 . De Hoogstraat Rehabilitation . nl.
  18. Web site: University Medical Center Utrecht . Achondroplasia . Expertise Network . 2023-11-20 . Expertise Network Achondroplasia . nl.

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