Autism-friendly explained

Autism-friendly means being aware of social engagement and environmental factors affecting people on the autism spectrum, with modifications to communication methods and physical space to better suit individual's unique and special needs.

Overview

Individuals on the autism spectrum take in information from their senses as do allistic (non-autistic) people. The difference is they are not able to process it in the same manner as their neurotypical peers and can become overwhelmed by the amount of information that they are receiving and withdraw as a coping mechanism.[1] Additionally, it may be that an autistic person is actually taking in more sensory information and is merely overwhelmed by the sheer amount of input. As such, they may experience difficulty in public settings due to inhibited communication, social interaction or flexibility of thought development. Knowing about these differences and how to react effectively helps to create a more inclusive society. It also better suits the needs of autistic individuals.[2]

Being autism friendly means being understanding and flexible in interpersonal conversation, public programs and public settings. For example, a person might think that someone is being rude if they will not look them in the eyes or does not understand cliches like "it's a piece of cake", when in fact there may be a reason for this. Depending upon the individual's degree of language ability, a person who hears "it's a piece of cake" may take that literally and not understand that what is really meant is "it will be easy".[2] For someone on the autism spectrum, being in an autism-friendly environment means they will have a manageable degree of sensory stimuli, which will make them calmer, better able to process the sensory stimulation they receive, and better able to relate to others.[3]

Communication and social interaction

See also: Societal and cultural aspects of autism. Organizations interested in spreading awareness about autism and how to be autism friendly, such as The Autism Directory, have created training programs for communities to illustrate how autistic people may communicate or interact differently from neurotypical people, or people without autism. There are also suggestions for how to modify one's reaction to improve communication.[2] Some training examples are:[2]

Other pointers are: avoid making loud sounds; do not surprise them, let them know your plans; limit or avoid vigorous activities; and talk or engage in activities that they care about.[2] [4]

Environment

Some autistic people may be hypersensitive to changes in sight, touch, smell, taste and sound; The sensory stimulus could be very distracting or they could result in pain or anxiety. There are other people who are hyposensitive and may not feel extreme changes in temperature or pain. Each of these has implications for making an autism-friendly environment.[5]

Social factors

There are several factors in creating a supportive environment. One of them is adherence to a standard routine and structure. Since change of routine can be quite anxiety-producing for many autistic people, a structured, predictable routine makes for calmer and happier transitions during the day. Another important factor is creating a low-arousal space. Environments with the least amount of disruption will help autistic people remain calm. It is important to speak in quiet, non-disruptive tones and to use a physical space that has a low level of disruption. Having a positive, empathetic attitude and ensuring consistent habits in work, school and recreational activities also help to minimize anxiety and distress and help an autistic person succeed. This is the SPELL approach: StructurePositiveEmpathyLow arousalLinks.[6] [7] Social Stories can be used to communicate ways in which an autistic person can prepare themselves for social interaction.[8]

Physical space

There are several ways that the physical space can be designed and organized to be autism friendly. It is important for rooms to be decorated with serenity in mind, like painting the walls with calming colors. Thick carpeting and double-paned glass help to minimize distracting noise (e.g., noise pollution). Materials within the rooms may be organized, grouped and labeled with words or symbols to make items easier to locate.[9]

Topics

Daily life

Autism friendliness can have a significant impact on an individual's interpersonal life and work life, benefited by consistency across all areas of one's life.

Vacations

As the break of routine in family vacations causes distress to some autistic people, many families may avoid taking vacations. Steps can be taken to help make for a successful family vacation. One is sharing information like pictures or internet web pages. There are organizations that will make accommodations, if requested, to better manage common stressors such as uncertainty, crowds and noise disruption. This includes theme parks that allow autistic people to skip long lines and airlines or airports that may allow for a dry-run prior to the trip. Another tip is to prepare prior to the trip so that there is a plan for managing boredom.[10]

Entertainment

Theatre

In the United States, the Theatre Development Fund (TDF) created a program in 2011 to "make theatre accessible to children and adults on the autism spectrum". Called the Autism Theatre Initiative, it is part of their Accessibility Programs, and was done in conjunction with Autism Speaks, Disney and experts who reviewed the performance for areas of modification. Adjustments that have been named for the initiative include: quiet areas in theatre lobby, performance changes that reduced strobe light use and noise, and areas where people can go perform an activity if they leave the theatre. Social stories, which explain what the experience will be like (such as loud noises, needing a break and moving through a crowd), were made available prior to the performance. These performances included Lion King and Mary Poppins.[11] [12] [13] [14] [15]

On London's West End theatre was the premiere of the first autism-friendly performance of Wicked, on 14 May 2016.[16]

Movie cinema

Going to a movie theater can be an overwhelming experience for someone on the autism spectrum. Crowding as people queue up to buy tickets, loud movie volume, and dark theater lighting can all be sensory overload triggers that keep some autistic people from ever seeing movies at the cinema. Some movie theaters are becoming more autism friendly: the lighting is adjusted so it is not so dark, the volume is reduced and queues are managed to prevent crowding. Odeon Cinemas in London has implemented such "sensory-friendly" nights.[17]

In the United States there are also "sensory-friendly" moviegoing experiences to be had through collaboration with the Autism Society of America. Monthly, AMC Theatres (AMC) will provide nights when people on the autism spectrum and their families may experience an autism-friendly movie night. The program is also intended for people with other disabilities whose moviegoing experience will also be improved in such a setting.[18] [19]

Santa Claus

In Canada, malls operated by Oxford Properties established a process by which autistic children could visit Santa Claus at the mall without having to contend with crowds.[20] The malls open early to allow entry only to families with autistic children, who have a private visit with Santa Claus. In 2012, the Southcentre Mall in Calgary was the first mall to offer this service.[21] The children are given a booklet explaining the process, and upon arrival at the mall are placed in a waiting area near Santa Claus before their visit "to ensure their comfort".

Education

Providing the best outcomes for a child on the autism spectrum may be difficult, complicated by each child's unique way of managing communication and interaction with others, associated disorders that make each child's situation unique, and emerging understandings of neurodiversity. Teacher effectiveness can be optimized based upon their awareness of the differences along the autism spectrum, acceptance that each child is unique, engagement of the child in social and educational activities and employment of teaching methods that are found to be helpful with people with developmental disability.[22]

Teachers play a key role in the success of a student on the autism spectrum by helping them to understand directions, organize tasks and support their achievements.[23] One example is organizing and grouping materials together for activities in specific ways.[24]

Teachers give autistic students extra time to answer when they ask them a question. Autistic children take time to process information but they are listening and will respond.

Schools dedicated to being autism friendly, like Pathlight School in Singapore, designed their campus to offer students "dignity" in an autism-friendly environment. There the campus was architecturally designed, landscaped and the interior created with a simple color scheme. All of this helps to avoid triggering sensory overload. There is a high teacher to student ratio, a focus on nurturing, and a comprehensive life-skills training and education program.[25] [26]

In regards to students who show a significant delay in acquiring academic and verbal communication skills, one available option is Applied Behavior Analysis (ABA)-style placement for their child. There is evidence, however, that ABA's methods may lead to autistic people developing PTSD.[27]

Empathizing-systemizing theory

Empathizing-systemizing theory with video technology can be used to present information in an autism-friendly way that promotes understanding. For instance, computer applications or DVDs of actors making facial expressions to inform how body language provides clues about how someone might be feeling. Or, in the case of The Transporters, interesting items like trains are used to wear faces, drawing in the viewer into the faces.[28]

Justice and law

Being met with an individual in a dark uniform can be intimidating to an autistic person, particularly when they have been a crime victim or are injured. Police and emergency responders may become frustrated, not knowing a person that they are talking to is autistic. The responders may not be communicating in a way that will create understanding and make the situation less stressful. A program has been launched in London, Ontario, Canada to enter information into a database about autistic people so that responding police and emergency personnel are notified when they will be meeting an autistic person and may then communicate in a way that increases understanding and makes the situation less stressful.[29] Autism Alert Cards, for example, are available for autistic people in London, England, UK so that police and emergency personnel will recognize autistic individuals and respond appropriately. The cards, which encourage autism-friendly interaction, have a couple of key points about interacting with autistic people.[30]

Life events

Neurotypical people and those on the autism spectrum may have very different ways of communicating their feelings about life events, including:

Just because people may process and communicate their feelings differently, though, does not mean it is right or wrong. It is best to be honest and literal to help an autistic person to manage major life events. Providing information, and allowing them time to process it, are other important factors. Lastly, communication tools will also help to process and manage the event.[32]

People on the autism spectrum can help themselves manage situations by being aware of what they are feeling and thinking — and expressing their thoughts to important people in their life. Other tools are being aware of when they need help and asking for it — and thanking people when they have received assistance or a gift.[33]

Technology

Educational technological applications for people with autism include:

Digital talking books

Digital talking books are used to assist people with disabilities, commonly people who are blind, and also for autistic people. One such use is for taped church programs.[34]

Mobile applications

Types of technology

Training for businesses

As the prevalence of autism increases, it becomes increasingly important to ensure that customer-facing organizations have basic tools for communicating with people on the autism spectrum. Tesco, a multinational supermarket chain, has implemented training for its employees to meet the needs of its customers who are on the autism spectrum, which is estimated to be one of every 100 people in the United Kingdom. Employees use an online training site and respond to a questionnaire to assess the extent to which they became more aware of autism spectrum disorders (ASD). Tesco is the first company to participate in an awareness program led by the Welsh Local Government Association (WLGA). The online training and questionnaire tool is intended to be used by many organizations in Wales to identify and commend businesses that are "ASD Aware".[37]

The SERVICE principles have been developed to guide businesses in making no-cost or low-cost changes to their premises and practices.[38] The principles address common challenges that people on the autism spectrum face when they are out in the community. By applying as many principles as possible, businesses can address the most frequently occurring challenges reported by autistic people. Corrimal, New South Wales, Australia is working towards being the first autism-friendly community in Australia.[39]

Recreational facilities

Inclusive recreation

Inclusive recreation, also called adaptive recreation, is when recreational activities are modified to accommodate disabled people.

Community involvement

See also: List of films about autism.

Organizations or programs that promote autism-friendly efforts are:

Autism rights movement

The autism rights movement encourages autistic people to "embrace their neurodiversity" and encourages society to accept autistics as they are. The movement advocates giving children more tools to cope with the non-autistic world instead of trying to change them into neurotypicals, and says society should learn to tolerate harmless behaviours such as tics and stims like hand-flapping or humming.[41] Autism rights activists say that "tics, like repetitive rocking and violent outbursts" can be managed if others make an effort to understand autistic people, while other autistic traits, "like difficulty with eye contact, with grasping humor or with breaking from routines", would not require corrective efforts if others were more tolerant.[42]

Autistic pride

Autistic pride refers to pride in autism and shifting views of autism from "disease" to "difference". Autistic pride emphasizes the innate potential in all human phenotypic expressions and celebrates the diversity various neurological types express.

Autistic pride asserts that autistic people are not sick; rather, they have a unique set of characteristics that provide them many rewards and challenges, not unlike their non-autistic peers.[43] [44] [45]

See also

Further reading

External links

Autism Awareness presentation or training material
Autism Awareness Aid
Aspergers
Other information

Notes and References

  1. Caldwell, Phoebe and Jane Horwood. (2008). Using Intensive Interaction and Sensory Integration: A Handbook for Those Who Support People With Severe Autistic Spectrum Disorder. Jessica Kingsley Publishers. p. 16. .
  2. http://www.theautismdirectory.com/awareness-training/ Autism Awareness Presentation.
  3. Caldwell, Phoebe and Jane Horwood. (2008). Using Intensive Interaction and Sensory Integration: A Handbook for Those Who Support People With Severe Autistic Spectrum Disorder. Jessica Kingsley Publishers. pp. 15-17. .
  4. https://web.archive.org/web/20100508042332/http://www.time.com/time/specials/packages/completelist/0,29569,1893554,00.html Six Tips for Traveling with an Autistic Child.
  5. Nguyen, Anh. (2006). Creating an Autism Friendly Environment. National Autistic Society. p. 3. .
  6. Nguyen, Anh. (2006). Creating an Autism Friendly Environment. National Autistic Society. pp. 5-6. .
  7. http://www.autism.org.uk/SPELL SPELL.
  8. http://www.autism.org.uk/living-with-autism/strategies-and-approaches/social-stories-and-comic-strip-conversations/social-stories-their-uses-and-benefits.aspx Social stories: their uses and benefits.
  9. Nguyen, Anh. (2006). Creating an Autism Friendly Environment. National Autistic Society. p. 7. .
  10. https://101autism.com/travel-tips-for-children-with-autism-spectrum-disorder TRAVEL TIPS FOR CHILDREN WITH AUTISM SPECTRUM DISORDER.
  11. Piepenberg, Erik. (August 31, 2011). "Program Hopes to Make Broadway Friendlier to Those With Autism." The New York Times. Retrieved September 8, 2012.
  12. http://www.tdf.org/TDF_ServicePage.aspx?id=128 Autism Theatre Initiative.
  13. http://www.tdf.org/emailimages/tap/ati/LNSS.pdF Loud noises.
  14. http://www.tdf.org/emailimages/tap/ati/NAB.pdf Needing a break.
  15. http://www.tdf.org/emailimages/tap/ati/MTC.pdf Moving through crowds.
  16. Web site: Wicked To Host Dedicated Autism-Friendly Performance. London Theatre Direct. January 28, 2016. January 26, 2016 . Porteous, Jacob.
  17. Roxby, Philippa and Sophie van Brugen. (August 12, 2011). Autism-friendly film gets people relaxed about cinema. BBC. Retrieved September 6, 2012.
  18. http://www.autism-society.org/get-involved/events/sensory-friendly-films/ Sensory Friendly Films.
  19. http://www.amctheatres.com/programs/sensory-friendly-films In Partnership with the Autism Society, We Bring AMC Sensory Friendly Films to Families Affected by Autism on a Monthly Basis to Select Communities.
  20. News: Autistic kids get quiet time with Santa at malls. DeMara. Bruce. Toronto Star. 25 November 2013. 2013-12-21.
  21. News: Canadian malls offer quieter, calmer visits with Santa for kids with autism. CTVNews. 24 November 2013. 2013-12-21.
  22. Carol Gray. Learners on the Autism Spectrum: Preparing Highly Qualified Educators. AAPC Publishing; 1 May 2008 [cited 17 September 2012]. . p. 35–.
  23. Web site: Children with autism spectrum disorders: Basic knowledge for parents, schools and kindergartens . Helpseeker.net . 2021-01-15.
  24. Breitenbach, Marlene. (2008). Basic Skills Checklists: Teacher-Friendly Assessment for Students with Autism or Special Needs. Future Horizons. .
  25. Leow Si Wan, "A Path to work life", The Straits Times, 28 April 2010.
  26. http://www.autism.org.sg/press/2010/0901-a_unified_whole-d+a.pdf A Unified Whole.
  27. Web site: Evidence of increased PTSD symptoms in autistics exposed to applied behavior analysis .
  28. Eric Hollander; Alex Kolevzon; Joseph T. Coyle. Textbook of Autism Spectrum Disorders. American Psychiatric Pub; 18 October 2010 [cited 17 September 2012]. . p. 45.
  29. https://www.londonpolice.ca/en/services/Autism-Spectrum-Disorder-Registry.aspx Autism Spectrum Disorder Registry
  30. https://edition.cnn.com/2019/07/12/health/london-police-autism-cards-scli-gbr-intl/index.html Autistic Londoners issued with 'autism alert' cards by police
  31. Fahrety, Catherine (author) and Gary B. Mesibov, PH.D. (contributor). (2008). Understanding Death and Illness and What They Teach about Life: An Interactive Guide for Individuals with Autism or Asperger's and Their Loved Ones. Future Horizons. pp. viii - xiv, xxvi. .
  32. Fahrety, Catherine (author) and Gary B Mesibov, PH.D. (contributor). (2008). Understanding Death and Illness and What They Teach about Life: An Interactive Guide for Individuals with Autism or Asperger's and Their Loved Ones. Future Horizons. p. xxviii. .
  33. Fahrety, Catherine (author) and Gary B Mesibov, PH.D. (contributor). (2008). Understanding Death and Illness and What They Teach about Life: An Interactive Guide for Individuals with Autism or Asperger's and Their Loved Ones. Future Horizons. p. xxviiii. .
  34. http://www.lds.org/church/news/updated-talking-book-program-benefits-church-members-with-disabilities?lang=eng Updated Talking Book Program Benefits Church Members with Disabilities.
  35. http://www.huffingtonpost.com/2010/08/18/ipad-apps-for-autism-and-_n_686020.html "iPad Apps That Help Autistic Children's Development."
  36. Heasley, Susan. iPod May Ease Transition For Those With Autism. Disability Scoop. September 6, 2012. Retrieved September 6, 2012.
  37. http://www.wlga.gov.uk/english/media-centre/supermarket-giant-tesco-signs-up-to-wlga-asd-aware-scheme/ Supermarket Giant Tesco signs up to WLGA ASD Aware Scheme.
  38. https://www.autismfriendlycommunities.com/principles.html What is SERVICE?
  39. https://www.illawarramercury.com.au/story/5988019/corrimal-on-track-to-be-australias-first-autism-friendly-town/ Website making Corrimal businesses more inviting to those on the autism spectrum
  40. http://www.theautismdirectory.com/awareness-training/ Awareness training.
  41. Autistic and proud of it . 18 June 2005 . New Scientist . Trivedi, Bijal . 2504 . 36.
  42. News: Harmon A . How about not 'curing' us, some autistics are pleading . 2004-12-20 . New York Times . 2007-11-07.
  43. News: Saner E . 'It is not a disease, it is a way of life' . The Guardian . 2007-08-07 . 2007-08-07 . London.
  44. Web site: Shapiro, Joseph . Autism Movement Seeks Acceptance, Not Cures . NPR . June 26, 2006 . 2007-11-23.
  45. Costello, Mary . Autistic Pride . Irish National Teachers' Organisation . InTouch . January–February 2006 . 26–7 . 2007-11-24 . https://web.archive.org/web/20071120024107/http://www.into.ie/ROI/Publications/InTouch/2006/JanuaryFebruary2006/File%2C2407%2Cen.pdf . 2007-11-20 . dead .